Do you believe in miracles?

As my daughter is about to turn 7 in a a few months, I can’t but shake my head in disbelief how far she has come!! Many of you know my story and why I am so passionate about life, about enjoying the little things in life and just live everyday with a grateful heart. Today I wanted to share with you my daughter’s story and just like her mama she is a survivor. I have heard it many times say that she looks wise beyond her years and I think you can see in her eyes that indeed she is wise beyond her years. When I was 5 months pregnant with her I was hospitalized first for a very bad sinus infection, then while pregnant with her I had to have my appendix removed and a few days after that I was hospitalized for over a month with an infection called C-Diff. This infection is caused by an imbalance of the intestinal flora and most of the times is caused by too many antibiotics. Usually C-Diff is cured with some very strong antibiotics and it usually lasts 3 to 4 days. I was not so lucky and neither was Isadora. The doctors said that my stomach sounded like a cemetery, I had a tube in my nose to drain all the gastric juice and everyday instead of getting better I was getting worse. My body started retaining water and no matter what the doctors tried I kept retaining more and more water and in less than 2 weeks I gained 100 lbs. The amount of pain I was in is hard, hard to describe as my whole body was so swollen and nobody could even tell that I was pregnant. All this time my little Isadora was trying to grow as I was just 5 months pregnant. Because the pain was so unbearable, the doctors gave me a morphine pump and very strong pain pills and nothing would work!!!

I remember a lady from pastoral care in the hospital would come everyday and bring me books that I could try to read to Isadora so despite the stress she was suffering because of all the pain I was in and all the medicine, that she would hear my voice and know that everything is ok. Since I was not able to eat anything for my stay in the hospital, I had a PIC line in my arm so that Isadora could at least keep on growing. All the ultrasounds where showing that she was not growing as much as she the doctors wanted to and that was mostly because of the fact that I was just lying in a bed, not being able to even have water, no food and a lot of pain pills. I had to have lots of x-rays and CT scans while pregnant and there was really no way to protect Isadora while they did all the x-rays because the doctors were very concern about my colon and they wanted to keep an eye on it so it would not burst open. Despite all the things that doctors tried to do to get my body to eliminate the water and start working again, nothing seemed to help and we finally sat down and the doctors told us that the only option left would be to transfer me to a new hospital, remove my colon and deliver Isadora at 5 months. They told us what to expect when a baby is delivered that early and it was a scary, scary thought to even think what it would mean to deliver her at 5 months. The night before the doctors said they will transfer me to a new hospital my body started eliminating some water and I believe I lost over 11 lbs one night. When the doctor walked in that morning he said well we gotta get ready for the transfer and I said but look my body has eliminated some water. He didn’t believe me thinking the nurses gave me a water pill and I remember him going outside the room to read the notes. I honestly to this day can’t explain how that happen but I can tell you that for me that was a miracle!!!

I got discharged a few weeks after that but I still had to take very strong pain pills as I was was in severe pain still. And all this time my sweet little Isadora was still trying to grow despite all the strong medicine that it was of course going to her too.

I went on with my pregnancy but I still had to see a high risk pregnancy specialist once a week to make sure everything looks ok. May 20th came and I had to have a C-section and all I remember is that I didn’t get to see Isadora as they rushed her to NICU. All I could hear is that she was born with a hole in her chest and they could see her heart beat. They didn’t keep her in the Nicu for long because she seemed to have been doing ok. My little girl that had already been through so much was born with most of her sternum missing. But she was healthy otherwise and of course my heart broke to see her little body not perfect but I was thankful she was alive. Everything seems fine up until she was 7 weeks old when she started having difficulty breathing. We didn’t think much of it but they she was gasping really hard for air. We took her to 2 different hospitals at the emergency room but after they would give her some steroids she would be better so they said that we shouldn’t worry about anything, she will be fine. We take her back home and she was getting worse and worse and starting turning blue and we kept thinking… well the doctors said not to worry. But after a few hours when nothing seemed to help we went to a different hospital and this time the doctor decided to put a camera and look in her little airway. The exam showed that inside her airway there was a hemangioma growing blocking 80% of her airway. Most of the time hemangiomas are left alone as they will grow for a while and then they will go away but in Isadora’s case she had to have it removed as that would have put her life in danger to have something growing inside her airway. The doctor was also part of a team of doctor researching a new syndrome PHACES and when she saw the missing sternum, the hemangioma in her airway and also a hemangioma on her bottom lip, she realized that Isadora had PHACES syndrome. While we were hospitalized, Isadora had to undergo lots of tests to see what parts of her body are being affected by this syndrome. Poor little girl was poked around and so many nights we could not even feed her and she was crying so so bad but because she had to have different procedures they didn’t want her to have anything to eat.

There is a 75% chance that children with PHACES syndrome will have brain malformation and only 5% that they will have a missing sternum so when the doctors did the brain test I was sure that she will have some malformations of her brain. And she did, when the doctors read me the finding I just looked at them and didn’t even know what to make of what they were saying. Even though it was not very severe what they found, they said that they can’t tell me if she will ever be able to walk, or talk or have a normal childhood. Her heart test came back as abnormal too. As much as I wanted to have at least some good news about my little girl, there was nothing I could hang on. At 7 months she had to have surgery to have her hemangioma removed and the pictures you see bellow is her recovering from that surgery!!! She would just have these big eyes and look at me like saying : “Mama save me:(” and I could not do anything about it.

Because of the hemangioma on her lip and also to make sure the one in her airway will not start growing, she was on steroids for the first year of her life. If you see her all chubby in the pictures it’s not that she was a chubby baby but because the steroids made her look puffy. She was such a good baby but I honestly don’t remember her smiling too much. She was behind with her gross motor skills and I was starting to get worried when at almost a year she was not able to roll over.

I tried to research doctors online to see if they can help Isadora with her missing sternum and if there was anyway that they could try to fix it. I called doctors around the country and finally I found a doctor at Boston’s Children Hospital that said he will try to do it even thought he has never done a surgery like this before. We flew from Washington state all the way to Boston and after a 9 hour surgery the doctor said we can go and see her. In the middle of the surgery one of the doctors said that the only way to fix that would be to take some bone from her scalp but the doctor that I was in contact with said: ” I am not going to go out and tell the mom that I will take bone from her scalp!” They took a bone from a cadaver and he explained to me how they tried to put the bone in there in the hopes that it will grow as Isadora grows. Again, no guarantees, just wait and see. Well, the surgery was about 7 years ago and so far the bone they put in there has grown with her. Does it look perfect?? Not at all. In fact when I see kids and look at their sternum it looks so very different to me as Isadora’s still looks like something is missing there. I tell her that an angel came and kissed her there:). Will she have to have more surgeries in the future? Honestly, I don’t know!! I was worried that as she started doing sports and mostly gymnastics since her collarbones are shorter that somehow it will hurt her or stop her from doing certain things. But so far nothing seems to stop her from being a normal kid.

She had a few other things that the doctors could not figure out what was going on but all that is behind her now. She has been through so much and I know that everything happens for a reason and she will do great things in life. Why am I sharing her story with you? Well, because I know that each one of us has struggles in this life, some more than others maybe, but if we do the best we can despite our circumstances, if we are patient and never give up, miracles CAN happen!!! I was the biggest skeptic when it came about miracles but I can tell you that I witnessed way to many miracles in my life to still remain a skeptic.

Isadora is my little miracle!! I do worry at times about her since this syndrome is fairly new and they don’t have any adults to know how long they lived or how the syndrome might affect kids as they grow older. But despite the worry I make sure I let my daughter know each day how amazing, beautiful, kind and talented she is. I don’t take any day for granted and each day with her is a miracle!!! She is so smart and even though she is not even 7 yet, she reads big chapter books, she is so funny and silly and had I given up 7 years ago and be bitter about why she is not perfect like other kids, I might not have been able to enjoy her as much today!!!

Bellow is a little slideshow with some pictures from when she was born and then I am ending the video with pictures of her today!!! I am in tears every time I look at those pictures when she was in the hospital and my heart will always, always be so so very grateful for the girl I have today!!!

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Renee Saenz - February 6, 2012 - 8:32 pm

I too have miracle children and everyday is such a blessing that at one point you were just sure you would never have. Isadora is truly a gift from God and it is wonderful to see the love and awe that have for her.

Clarissa - February 6, 2012 - 8:38 pm

This is beautiful and heartbreaking and beautiful. I cannot imagine what you have been through. Watching your slideshow reminded me of when my oldest daughter was little. She was hospitalized 4 times in her first year of life for breathing issues- it was so hard to see her in the little hospital “crib”, hooked up to IV’s. I remember asking “why? why does our daughter have to go through this” but I continued to tell myself that we had it good. We knew that her stay would be short, she would get to go home with us. She was growing and thriving. And that there were parents on the pediatric floor who could not say the same thing. And I had to remain positive. Martina McBride’s song is one of my favourite songs- I cry everytime I hear it. Your strength and postivity is inspiring. I hope that my talent can someday be admired as yours is. Your daughter is gorgeous. Thank you for sharing and for being an inspiration.

Andrea Machado - February 6, 2012 - 8:41 pm

Isadora and you are truly an inspiration. Thank you for sharing your story with us. My promise to you is to appreciate and never take for granted the gift I was given with my three children and husband. We should all be so lucky to go through a quarter of what you have gone through and come out such a positive, passionate, determined and loving human being. God bless you and your family!

Sara - February 6, 2012 - 8:42 pm

Such a beautiful story. I cried through the entire thing. So amazing to see how she has grown and overcome at such a young age. It’s beautiful to see. Thank you so much for sharing. You continue to be such an inspiration to me.

BritneyD - February 6, 2012 - 8:43 pm

Beautiful, such an inspiration you and your daughter, and your whole family are. God bless you and the ministry you provide to so many!

Jesica - February 6, 2012 - 8:45 pm

She is definitely a miracle & I am so heartbroken at the story at the beginning of her life but I am so GLAD that she is a fighter & that she is doing so much better. I love to hear about what she is up to & see her beautiful pictures that you take of her. You are both so BLESSED to have each other :)

Sandy - February 6, 2012 - 8:46 pm

What a wonderful story Lidia! Thank you for sharing and for both you and Isadora being an inspiration!

P.S. I like your new blog layout! <3

Debbie - February 6, 2012 - 8:47 pm

This story touched my heart. I know the pain of having your newborn in NICU hooked up to all kinds of things, not knowing if your child will live or die, and having to leave the hospital without the child you carried for months. My son was full term (40 wks) and spent the first week of his life in NICU due to cerebral asphyxia (lack of oxygen to the brain); he got stuck in the birth canal. For the first 2 days, no one was sure if he would make it. Doctors warned us about possibilities of respiratory problems and learning complications. I was so worried. My husband and I worked with him a lot to try to help him advance as a child should. He is now 17 months old and hasn’t had any problems that we were warned of. He is a miracle to us just as Isadora is to you. :) She looks just like you and she is absolutely beautiful!! You are very blessed!! :)

Jamie Desjardins - February 6, 2012 - 8:48 pm

Miracles come in all shapes and sizes, and Isadora is CERTAINLY one! She is just PERFECT the way she is (honestly, she is stunning). I had a rough delivery of my little girl (she was perfect, I had a LOT of issues and spent a long time in the hospital, not nearly as long as you, but long enough) and I know about miracles! I thank God every day that He let my baby girl (soon to be 7 also!!) be okay when she was born, and that it was me that was sick. I too blew up like a balloon with water…lost 35 lbs. in 3 days! It was crazy and horribly uncomfortable, so I know how you feel! YOU are a miracle, and the fact that you still look to God and praise Him is wonderful! God Bless you, Isadora and all of your family! You are a beautiful soul and the Lord knows this. <3

Fran mouser - February 6, 2012 - 8:51 pm

Omg, I’m in tears reading this. I would have never guessed! She’s so perfect! So smart! Such a beautiful talented smart little girl. All I can say is thanks… To you and the gorgeous little miss Isadora! Thanks for sharing yalls story! Thanks for sharing each other! I love seeing the videos of her! Thank you Isadora for sharing your mommy with us! y’all are both such a huge inspiration! God bless you both!!!

BRANDY HENDERSON - February 6, 2012 - 8:52 pm

I know what it is like to have miracle kids, I wasn’t supposed to be able to have kids and I have an adorable soon to be 8 yr old and a very cute 5 yr old. To give you some hope though my aunt was severely handicapped and they could never tell my grandparents what was wrong with her. The doctors told her that she would never live to see her teenage years and boy were they wrong. My aunt was 27 when she died, she lived fourteen years after the age they said she would never make it too.

Jennifer Barker - February 6, 2012 - 8:52 pm

I knew you had been through a lot, but I had no idea of how much the both of you have had to deal with. The slide show at the end is simply amazing. Your daughter is so beautiful. You are one lucky mommy and she is one lucky girl!! Thank you for sharing your story with us.

Sam Allred - February 6, 2012 - 8:53 pm

Oh my goodness Lidia! This is such an amazing story! God surely has blessed you with one wonderful miracle. I see the adorable videos you post of her. After I watch them my day is just put in a different perspective, a happy one. Your Isadora has such a special gift to be able to bring positivity into this world. I will put your family in my prayers! God bless!

Cara Dahlquist - February 6, 2012 - 8:56 pm

What a beautiful story! Thank you for sharing. I have a little miracle of my own. Our first son was diagnosed with several heart defects hours after he was born. After three weeks of obstacles, he had open heart surgery and spent two more weeks in the hospital. These little ones are so strong!You and your daughter are fighters.
His whole journey is on our blog.
http://willandcaradahlquist.blogspot.com/p/lincolns-story.html

sandy - February 6, 2012 - 9:03 pm

lidia, thank you so much for sharing this beautiful story. i am deeply moved. cried reading it. you both have gone through so much in your lives and are so strong. i am truly bless to have read this. God bless you and yours. isadora is truly a miracle.

meredith - February 6, 2012 - 9:06 pm

Brought tears to my eyes. Children are such a blessing — and you are obviously such a terrific mom. And being a nurse on a pediatric floor — God brings miracles every day.

Adriana J - February 6, 2012 - 9:21 pm

such a beautiful and powerful story. Your daughter is truly a miracle!

Kelly - February 6, 2012 - 9:23 pm

Oh my goodness…she IS a miracle child…I would have never guessed she was anything but perfect…..You are such an inspiration Lidia, and I love that you share with us everyday a part of yourself and your little angel.

dena - February 6, 2012 - 9:32 pm

such a touching and truly inspirational story.. god bless you both !

Carla Carter - February 6, 2012 - 9:32 pm

I believe in Miracles! Your story is so touching! How good God is!! Your little girl is so beautiful and your work is as well! Thank you for sharing your story!

Cassie Kurtz - February 6, 2012 - 9:32 pm

This is so inspiring! Thank you for sharing this precious story. Your daughter is stunning and you are such a strong mom! Blessings on you, your family, and your photography!

Brandi ranallo - February 6, 2012 - 9:34 pm

Beatiful…*tears*…beautiful!!! Gid bless you both!!!

Naydia Davis - February 6, 2012 - 9:35 pm

The two of you are so inspiring! Truly survivors!! Thank you for sharing your story, I love following you on facebook, you are so kindhearted and giving. You are so right about everyone having personal struggles no matter how big or small. Though God will never give us more than we can handle.

Melinda Walters - February 6, 2012 - 9:36 pm

That was awesome!! I am so glad that Isadora is doing so well.
She is a very beautiful girl and she has an amazing mommy! I pray that all of the bad times are behind you both……

Mechelle Thompson - February 6, 2012 - 9:42 pm

She looks absolutely Perfect to me :)

MichelleW - February 6, 2012 - 9:43 pm

Dearest Lidia, thank you for sharing such a very sad but also beautiful story. I just cried reading this, what a precious gift you have been given in this beautiful little girl, my heart goes out to you both for all you have been through. You have both been truly blessed to have each other to share in this life and i am so very thankful to be able to share your inspiration and kindness.

crystal - February 6, 2012 - 9:43 pm

Lidia,
I read this story just now with my miracle baby sleeping away on my chest. When we found out that our baby has heart disease at our 20 week ultrasound I was very overwhelmed. But my husband told me something very powerful. He told me God gave us ‘this’ baby. God doesn’t make mistakes. He strategically placed my Libby with us. She is 6 months now. Your story brings me so much hope. I will pray for your beautiful girl. Your family is an inspiration!

Vera - February 6, 2012 - 10:11 pm

wow Lidia!!! You and your daughter are both such beautiful souls! Thankyou for sharing this!

Megan McGrady - February 6, 2012 - 10:11 pm

wow.Lidia,this is so moving. You and your beautiful daughter are such an inspiration to so many people! God bless you both!

Naomi - February 6, 2012 - 10:12 pm

Your story is truly inspiring ~ such a testimony to the depth of the love the Lord has for us and how His hand is constantly upon us strengthening and guiding us. Thank you for sharing this ~ I am a newer fan and did not know your story. May the Lord continue to reveal Himself to you in supernatural and miraculous ways and draw you near to Him. Many blessings <3 <3

Katina - February 6, 2012 - 10:28 pm

Such an inspiration! Thank you for sharing

Tina - February 6, 2012 - 10:39 pm

Thank you so much for sharing your and Isadora’s story! Every time I see her pictures I think she looks like a famous super model and i’ve never ever thought a single moment she was anything but perfect. And everything you post about what she says is so cute and intelligent that I never thought she had any kind of a disease. She’s a walking miracle indeed.

Vicky A - February 6, 2012 - 10:59 pm

God Bless your daughter, i was smiling throughout the whole video!

candy - February 6, 2012 - 11:01 pm

Thank you for sharing this i have sat and cried watching it and reading you are such a strong woman and that precious little angel is so beautiful. Never take anything for granted it could always be worse God Bless you Both <3

Caitlin Watson - February 6, 2012 - 11:24 pm

Lidia,
you and Isadora are both such amazing people! Isadora is such a beautiful, smart little girl. This story is amazing to hear, and good to hear since I have had a rough time with the surgeries we have had to have with the little girl I nanny. This has helped a lot. You are an amazing mom, it shows in everything you do. I loved the video you made too, made me want to cry. Thank you for sharing this. I hope one day to meet you two.

Samantha - February 6, 2012 - 11:45 pm

This is Beautiful! Its so hard to live for the moment when there are so many other things going on. You just keep going and tend to forget the important things. Thank you for telling your story so myself and others can see we need to slow down and be Thankful for what we have!

kari nichols - February 6, 2012 - 11:47 pm

Oh Lidia…
There are just no words! So BEAUTIFUL.. You are so blessed!

Missy - February 6, 2012 - 11:57 pm

Okay after I just cried my eyes out reading and watching that video…wow….you are so right. We all have our stories,times,things we go thru but It’s how we deal with those adversities that define us. You are not only a fighter,but a true winner who inspires us all. God has a big purpose for you and that sweet girl.
My husband,who is a police officer,was hit head on by a drunk driver while on duty. He was life flighted and died twice that night. Both times he was brought back. He was given a very grim chance of living,less than 5%. Massive injuries,including brain,tore his nose off,broke his orbital socket of eye,ribs broke,hand broke..basically his face and head were a mess. Not only did he defy those odds but he returned to being a police officer,something they told him he would NEVER do. Life sure makes you look at things in a completely different way when you have faced death square in the eye dont you think. Thank u for sharing your story and keep inspiring all of us!

Houda - February 7, 2012 - 12:13 am

So inspiring. Thanks a lot for sharing. Your daughter looks wonderful. GOD bless you both.

corina - February 7, 2012 - 12:16 am

Thank you for sharing such an amazing story! You both have been through so much and yet to look at the 2 of you in pictures you would never be able to tell. The smiles on your faces says it all :) I work in the health field.. photography on the side.. and your story is just unreal. I see so much.. and yet I can’t even imagine you gaining 100 pounds of water in 2 weeks.. You poor thing. The tremendous beating your body took.. and little Isadora as well. You have been a true inspiration. Little Isadora is such a Beautiful young lady and lucky to have you as her momma!

Maren Maatz - February 7, 2012 - 12:18 am

Lidia you was so strong during the time Isadora was so ill. Both of you are miracles! I have also two miracles. My twins were born in the 29. wks of pregnancy. Alexander needs one month oxygen but Tyler had more respiratoy problems. He needs oxygen for 10 month. Now they are 6 years and in few month they become schoolkids. The time flies and the problems too. Sorry for my bad english. It isn’t so good! Greetings from Germany. Hugs Maren

Keri Baker - February 7, 2012 - 12:34 am

Lidia, you are such an inspiration, and God gave that beautiful Isadora got your fighting spirit! You are both walking miracles and such witnesses to so many! Your blog brought tears to my eyes, of course. I miss y’all so much and wish I could hug you! Give Isadora my love too!!!!!

Patsy J Lander - February 7, 2012 - 12:46 am

I am so grateful that God has so many miracles to hand out! My son was born 6 weeks early and spent the majority of his first 4 years in the hospital with respiratory issues. I remember so many days of just asking God to please let him keep breathing! Sometime around the time he turned 6, the problems began becoming less and less. He was diagnosed with Hypoglycemia at age 5 and learned only on how important hid diet was in relationship of how he felt. They become so much more in tuned with their little bodies than we ever give them credit for. My beautiful son, Lance turned 39 on February 2 and hasn’t has so much as a cold in over 30 years! Healthy diets, lots of love and joy and they become remarkable children! He is so creative, spiritual and an absolute blessing to his family. He is now a Daddy himself and it just amazes me at what he has grown into from where he began!

I see Isadora flourishing in her environment and I know she will too learn that gratefulness for our health is something we can never take for granted! How blessed we are that God chose our babies for those miracles!

Mary Clark - February 7, 2012 - 12:56 am

Lidia, What a beautiful story faith, hope, love and triumph over adversity. My wish for you and your family is continued good health and a lot of colorful and happy days! You are so inspiring. Thank you so much for that. I believe everyone has something to learn from other’s struggles. Thank you for taking the time to share with us Isadora’s story. I really believe you are a beautiful example of love and hope and for that you should be very proud. Isadora is indeed a miracle and I get the feeling she will have an amazing life! She already has an amazing Mother. :]

Miriam/The Winter Guest - February 7, 2012 - 2:31 am

I’m really speechless. Yes, so many things we take for granted…

allie jean - February 7, 2012 - 5:05 am

Thank you for sharing Isadoras story with us. She is such a strong, smart, beautiful little girl and is so blessed to have a wonderful, caring, uplifting mother! I thank God every day for the miracle that is my son after being told mutiple times I would never be able to have children. Im so glad that you have your miracle as well.

Cheryl - February 7, 2012 - 6:34 am

I am so glad that you wrote and shared your story…what a journey. You are an amazing woman and mother. Your slideshow is beautifully and heart wrenching. Blessings~

Crystal - February 7, 2012 - 7:59 am

Wow, what an incredible, amazing story of your beautiful miracle! It brought me to tears. I do believe in miracles. My son, born at almost 29 weeks after a difficult, very scary pregnancy, is my sweet miracle. He’s almost 5 years now and doing well! Thank you for sharing about your darling daughter’s journey, and for the inspiration! ♥

Jennifer Staggs - February 7, 2012 - 8:57 am

What a blessing! Thank you for sharing your beautiful story! You captured her soul beautifully!!!

Agnieszka - February 7, 2012 - 9:28 am

Thank you for sharing. I’m happy your daughter is well today. And what a beauty she is! :) Lots of love from Sweden!

Maura - February 7, 2012 - 10:21 am

Beautiful story that made me cry. She is a sweet miracle.

Cindy Svoboda - February 7, 2012 - 10:23 am

I watched this video and read your story. It is so beautiful!!!! Your daughter is so blessed to have you as her mother. We so often take our lives for granted. You are truly my inspiration. I love my children so much!!! They are both grown now but I always want them to know they are my heart!!!
Thank you for being so open and sharing your life with all of us. May god bless you and your family.
Cindy

Angie Ochoa - February 7, 2012 - 12:28 pm

I am always in awe of the miracles that God gives us, by way of our children. I have an 18 year old son who was born with only 1/2 of his heart. By the time he turned 3, he had had two major heart surgeries (basically bypass surgeries…to take the superior and inferior vena cavae directly to his main pulmonary artery, rather than through the right side of his heart), as well as FIVE strokes! With two of the strokes, he was paralyzed on the entire right side of his body, and lost his hearing and speech. He also started having seizures, and is still prone to having febrile seizures, so we have to really monitor him when he gets a fever. Eventually his hearing and speech came back, but it was never the same as it was before the strokes. He struggles now, as a special needs teen. He also lost MUCH of his cognitive abilities, so he didn’t get the “common sense” stuff that most of us are instilled with. He will be on medicine for the rest of his life, and won’t be able to play sports like he REALLY wants to. He will likely have difficulties pursuing a career like most people are able to, but he has a good eye for photography, and has a good grasp on numbers, so between accountant and photographer, we think he’ll be just fine. :-) We are grateful that God chose to give him to us, and that he is still alive at age 18. We know that God has a special purpose for his life, just as he does for yours and your daughter’s! Thank you for sharing such an incredible story! I am always so thankful to read testimonies of God’s goodness.

Brenda Mason - February 7, 2012 - 12:39 pm

That is such an amazing story. Both you and Isadora are strong, amazing ladies. With all your trials and challenges, it is very clear that you both were meant to be here for a special purpose!

Farrah - February 7, 2012 - 9:29 pm

What a heart felt story. I can’t imagine the pain you felt watching your little baby go through all of this. What a true miracle you have. She is just beautiful…. inside and out. You can see that in her soul. God has something special planned for that little girl. Thank you for sharing and reminding others to be thankful for not only the blessings in our lives, but the challenges too. For we learn so very much through these times, as well.

Ryza - February 8, 2012 - 1:11 am

This made me cry…but im so happy she grow up into a very beautiful smart girl. She REALLY is a miracle. Thanks for sharing, it made me treasure my little girl more.:)

Nikki Kesterson - February 8, 2012 - 9:01 am

I cannot express enough what a perfect little miracle she is. This was so touching to read and the video to watch. It makes me so thankful for my two healthy beautiful children. We take everyday for granted and this has encouraged me to enjoy every second more of my children. You are a true inspiration Lidia, I am so thankful to have found you on facebook and continue to learn from you not only professionally but personally. Thank you for everything.
Bless you Isadora, you are going to make great things come from your beautiful and special life.
-Nikki Kesterson

Darlene Gibson - February 8, 2012 - 9:39 am

I want to thank you for sharing your miracle with us,You both have been through so much I cried as I read your miracle,You both are a miracle from God,I know God has some really big plans for Isadora and You.I have a lot of sickness but it’s nothing compared to what you 2 faced and are still facing,I know the Lord has his hands on the both of you,You are one of the very best mothers I know and Isadora is such a blessing from the Lord.Iam in awe of how you both went through so much and survived.God is so Loving so full of mercy and grace.You both are beautiful inside and out.Your story makes me appreciate life even more,Thank you so much for sharing.God Bless You Both.

Maricela Stout - February 8, 2012 - 10:44 am

I love your story, you and Isadora are so strong is no question about it. I am a photographer and I also work in Labor & Delivery and the NICU, I see this babies trying to survive and it brakes my heart to know that all i can do is just hold them and some time cry with them and their parents:’(

Tiffany Richards - February 10, 2012 - 11:34 am

Whoa, amazing story. A true miracle. God bless you and your family!

Lorie Hall - February 12, 2012 - 3:27 pm

Your’s is such a precious and moving story. Thank you for always sharing so much of your life with us. You are amazing!! Love you and your family!! Blessings!! Lorie

Jennifer - February 15, 2012 - 2:28 pm

That has got to be one of the most touching blogs I’ve ever came across. A mother’s love for their children is one of the most amazing things a mother can ever experience. I look at my two living children every day and I thank god for them. Even though one of my children was born sleeping… I’ll never forget the beauty she brought to my family for the short day we were with her. You are an amazingly strong person and I hope your daughter continues to have many more wonderful years in her life!

Jeri - February 22, 2012 - 4:48 am

As a mom, I cried watching your video – I now totally understand where your inspiration comes from…you totally capture the love in “the eyes”…so glad the doctors in Boston could help – I’m a few hours from there, so if you ever are back in the area and need anything….

Jennifer - February 29, 2012 - 3:18 pm

I loved reading your story. I have a miracle of my own who I am greatful everyday for. They are such a blessing beyond anyone can ever imagine. Praise God for his wonderful blessings.

Elsy - March 3, 2012 - 6:45 pm

Im in tears. I have 3 kids, and I can imagine the desperation a mother goes through, when their child is hurt and there is nothing you can do to make them feel better. Y’all are both amazing!! Beautiful story, thank God for all of his blessings. I hope he continues to bless both of you. :D

Glenna Walker - March 3, 2012 - 7:11 pm

I had twin boys (who were in the same sack) on May 27, 1987, delivered by c-section because one had the tube wrapped around his neck five times and he had diaphramatic hernia, meaning his whole lower stomach, intestines, kidneys, etc., had developed on top of his lungs, preventing his lungs from growing. His name was Joshua. My other twin Jared was fine. Josh underwent four hours of major surgery immediately after he was born, doctors didn’t think he’d make it through the night. He went through countless surgeries to try and repair the little body that just didn’t develop right, he was brought back to life many times and know one told us until it happened in front of ours one day while visiting, a mistake of the nurse. Joshua lived 13 months, never coming home from the hospital, before he died on June 29, 1988. We were told his trach got clogged while he was being suctioned, but nurses had made mistakes before by not turning his oxygen up beforehand therefore stressing him out so badly he was unable to recover. We suspect this was the case as he had been running 105 fever and his heart just wasn’t strong enough to fight back. Joshua was our little fighter and it was a miracle God shared him with us for 13 months and two days.

Isadora is perfect! It’s not what’s on the outside that counts anyway, but just look at her, she is one of the most beautiful little girls I have ever seen. I don’t have to tell you to thank God for her every day, I know you do. You are so blessed. Thanks for sharing this story! Isadora is a true miracle…♥

Rachel - March 3, 2012 - 7:15 pm

I was fortunate enough to have two beautiful healthy full term (and over) boys. But I have been a NICU nurse for the last 7 years. I see parents come through every day with obstacles to over come and admire parents like yourselves who overcome the biggest hurdles for those little people in their lives. Your daughter is just beautiful. 7 years late…congratulations.

shandell thompson - March 3, 2012 - 7:31 pm

she is perfect. beautiful inside and out….so lucky to have a little angel.

Amanda - March 3, 2012 - 7:38 pm

Wow! That was very moving! Thank you for sharing! Everyone can see how genuine you are and how much love you put into everything you touch! God bless you and your daughter! ♥

Genevieve - March 3, 2012 - 8:35 pm

What an incredible story of faith, hope and love. She is absolutely beautiful in everyway!

Becky - March 3, 2012 - 8:49 pm

I usually don’t leave comments, even though I am always following your fb page etc. But tonight I really felt that I had to.
You are a life changer… you have allowed your struggles to not only change you for the better, but to change all of us for the better. I wept as I read and truly was moved to be so much better. I have been blessed with 4 healthy children and I need to make sure like you, that I do not take each day for granted. That each of them know how much I love them and cherish there every breath. I have been so impressed with your warmth, kindness and wisdom over this past year… and your courage, courage that life can be what we make it. To find joy in the journey, and that their really is a higher power who loves us, watches over us and send us his miracles.

May he continue to do so for your beautiful little angel!!

Warmly,
Becky

karen - March 3, 2012 - 11:50 pm

Thank you for sharing your story. Isadora is beautiful!

Heather - March 4, 2012 - 9:04 am

Wow! I’m in tears. She IS definitely a miracle… thank you for sharing this with us all! May god bless you and your family. ♥

Austin - March 4, 2012 - 3:12 pm

No wonder you’ve become who you are, going through all of these trials. That is miraculous, and wondrous. No wonder you and your daughter have the bond that you do. Thanks for sharing this.

Stacy - March 4, 2012 - 5:51 pm

Your story is nothing short of a miracle. What a precious gift she is to you and you, to her <3 Such an inspiration you both are.

Luiza - March 26, 2012 - 3:05 am

This is beautiful, heartbreaking and Wonderful!
I read and watched the slide show in tears.
Reminder me when my little one was hospitalized after 8 days born. Miracles exists when we have to BELIEVE and NEVER GIVE UP!
Thanks for sharing,
Blesses <3

kasia - March 26, 2012 - 3:53 am

its an amazing story! so proud for you! she is a stunnnig little girl now!!!! thank you for sharing!

melissa - March 26, 2012 - 5:11 am

I think she’s perfect!

Patty Kousaleos - March 26, 2012 - 12:52 pm

our daughter is beautiful! Thak you so much for sharing your story. It made my heart ache just thingking of what you went through. I just had my 4th grandson and so far they are all very healthy. We must be graeteful for everyday we have with all these beautiful children as sometimes life throws a curve and you have to get past it. You sound like such an amazing woman! I am an aspiring photographer. I have alwasy been the one in my family to take the pictures and now I have taken web courses to learn more but I really learn from looking at other photographers work. Your photos are gorgeous!! Thanks for sharing- I truly admire you.
Patty

Martha - March 26, 2012 - 7:20 pm

I love the way you are so open and honest and willing to share your deepest, most treasured and most painful and joyful moments with all of us strangers on here… It is not often that someone can feel as free as you to open yourself and your life, as well as you daughters, to us. I love that about you. By you sharing life events with us, you have no idea how it helps all of us deal with our own stresses and troubles. Knowing that you have overcome so many things and are still here with your beautiful little girl makes us all realize that miracles DO exist, and that anything is possible. Bless you for sharing your world with ours. You don’t realize the good you do, and how wonderful you make us all feel….

Linsey Hathaway - May 17, 2012 - 3:44 pm

What a beautiful story and I’m praying for her now, while she’s back in the hospital. She’s the most gorgeous young woman I have ever seen. She definitely seems wiser beyond her years and will grow up to be an amazing person :) Thank you for sharing this with us.

fatima vazquez - May 17, 2012 - 4:21 pm

Wow! I have a knot in my throat by just reading this. It can only take a strong,exeptional,outrageous person like you to share something so beautiful like this :-) isadora is a perfect little girl does not matter how many obstacle came across in her journey she is a strong lil princess and we all know that she is special in some kind of way. she is the inspiration of all of us. She will be fine in no time qnd dispite of all her conditions
I also have a miracle baby who is 2 month and a half. I have juvenille diabetes and when i was 36 wks preg of my little girl it was also a second blessing since i have a 21mth old boy. Well my last visit to my ob was very tragic as he found out that my baby was under stress so he rushed me to the hosp. I had 5 dics in and out of the room checking on my lil princess as she was not breathing or responding i was very nervous . They gave me 50/50 of a chance that one of us would not make it if they waited any longer. At the op room i could not even swallow waiting for her first cry. 15 mins leter i heard her scream . She was born with respiratory distress and after that her heart rate rose to 320 and they could nit bring it down i thought i lost her there but my faith was so over the top . Once they schocked her everthing went to normal. she spent a moth qt NICU.
But we all have faith that isadora will be just fine. We all have a miracle baby in our lives ;-)

Rebecca Thompson - May 17, 2012 - 4:46 pm

This story touches my heart in ways you could not imagine, I do believe in Mircacles, GOD has a reason for everything, I just started reading you pages about 7 months ago or so, I remember the storms and your amazing Isadora drawing pictues and selling them for the proceeds to go to the victims….You have an angel living with you…she in my mind is an ANGEL that GOD has put here on earth to show so many of us that will take the time to notice that the only way to live is to care about and for others less fortunate than ourselves.. I feel blessed to have met you thru facebook, your post are always inspiring and you yourself have been thru so much…could it be that YOU ARE AN ANGEL ALSO??? I think so. Thank you for all you share and MAY GOD BLESS YOU ALWAYS.

Christy Geller - May 17, 2012 - 5:52 pm

I faught very hard to get pregnant and with my 2nd pregnancy I found myself pregnant with twins. At 20 weeks I found out that my son would not survive due to polycystic kidney disease. I carried him to term to give his sister her best possible chance, but was warned all the while at any moment he could go and take her with him. He held on until 34 weeks and after he was born lived for an amazing 7 hours with no functioning kidney. I am so grateful I got to say goodbye and so grateful that his sister is just fine. Little miracles, both of them. 2 months after their birth I was back in the same hospital after suffering with C-diff for over a month, it took 6 days to get me well enough to come home. I know how horrible that disease is and I’m so sorry you suffered with it as well. I am praying for your sweet Isadora and hoping she will overcome once again. I can tell you I would go through what you did 1,000 more times if it meant my son could be with me. I pray that in the end, all will be well.

Michelle Pierce - May 17, 2012 - 6:25 pm

Lidia and family. My heart goes out to you all. You are blessed with this little girl and I am keeping your family in my prayers. You are an inspiration to all of us and are truly amazing to me. Bless you and that little ray of sunshine, Isadora.

Jenny George - May 17, 2012 - 8:20 pm

This might be one of the most amazing stories I have read. Lidia, you have so many people praying and hoping! Isadora is the most beautiful little girl too! :) I have a little boy named Eli who is 2 now and has a rare blood disorder called ITP. He too had a rough little start to his life after he was born in March 2010. He is currently headed into a “remission” stage so I will only have many more years to wonder what might be next. I try to stay positive, but I do know it’s hard. My heart goes out to you and your family. I know this time is hard, and just wanted you all to know, I am thinking of you.

Jenny George

Brenda King - May 17, 2012 - 9:30 pm

Isadora is absolutely beautiful ! I hope she gets to feeling better soon, and that God gives the doctors the knowledge to figure out what is going on with her. You and your family are in my prayers !

Rachael Niles - May 18, 2012 - 7:24 am

Your story is amazing. God bless you and your family. Stay strong for her, she needs you. Praying for her to get well soon.

dina - May 18, 2012 - 9:39 am

lidia draga, tare m-a atins povestea ta, mai ales ca o citesc azi, cind lucrurile nu stau tocmai comod pentru tine, si cind trebuie sa lupti din nou cu fiecare gram de energie. nu stiu cum lucreaza Dzeu, dar aleg sa cred ca e bun si ne poate purta in brate chiar cind nimic nu face sens. ma rog pe tine si abia astept sa aud vesti bune si sa vad o alta postare victorioasa. Crede in miracole si hold on to hope.

Sherri Burgan - May 19, 2012 - 10:21 am

My heart is aching for you Lidia :(
Thank you so much for sharing your story of Isadora’s young life and her struggles. I knew she had something wrong when she was a baby but reading her story touched me and now I can understand what a strong and special little girl she is and what a very very incredible mommy you are! I have a son with SN and I feel for you and continue to pray for her to recover and for your health and strength. You and Isadora are a true inspiration!

Susan Peoples - May 23, 2012 - 3:48 pm

Praying for Isadora and her beautiful family, Medical Teams all over, all other children and their families,…God’s Grace and Love is Sufficient and I pray that HE embraces each of you through all things.

Samantha Thomsett - May 26, 2012 - 4:39 am

it makes me feel blessed to have had a healthy child – my sisters beautiful daughter who was born with a heart defect is now 16 and simply stunning she awaits a valve transplant next year fingers crossed this will be the last for a few years to come..

Karen - June 7, 2012 - 11:35 pm

A miracle for sure!! I’ll pray for your beautiful daughter ( and that she is)!! What a stunning beautiful little girl. We are so lucky to have such wonderful medical teams to help. I had two healthy kids, but only 7 months ago I had to endure seeing my 14 year old daughter get major back surgery. I found it very tough seeing her go through this and not be able to do anything more. I can just imagine how hard it must have been for you. I will pray for you also, sending you lots of strength (but you already have a lot). May God bless you and your family!

Débora - September 2, 2012 - 1:49 pm

Hello. My name is Débora. I’m from Brazil and I was sad because for a long time I searched for photography tutorials and couldn’t find anything… so I find you and you made me smile and cry on this sunday. Thank you for sharing your knowledge in photography and life experience.
I was looking specifically for this type of work:http://www.ohsoposhphotography.com/blog/?p=5063
Thanks and have a nice day!
:)

Zujey - March 4, 2014 - 2:25 pm

My daughter have hemangioma and she is been tested for PHACE. She had a MRI done las month and they so something abnormal with her Carotid Artery. Now she will be getting a Arteriogram. But Dr haven’t say anything about PHACE. Your story is beautiful and make me feel much better about my situation. God Bless you and your daughter..

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